Connecting people

“We are very happy to support and organise face-to-face ENMC workshops to facilitate the communication and collaboration between clinicians, researchers and patient representatives in the NMD field”

Welcome to ENMC

Most neuromuscular disorders are rare (orphan) diseases, meaning that fewer than 1 in 2000 people are affected. They all cause a weakening of muscles, which could lead to tremendous disability. Because of this, international collaboration is extremely important to accelerate our knowledge and discovery of new medicines in the field of neuromuscular diseases.

Read more

ENMC reviews workshop applications bi-annually in March and September.

Next submission deadline for a workshop application: 1 September 2025. Apply here

THEMED WORKSHOPS

In addition to the regular open workshop applications, where the topics are proposed by the workshop organisers, the ENMC also offers “Themed Workshops”. For this type of workshop, the ENMC’s stakeholders have identified two specific themes that are prioritised based on the needs of neuromuscular patients and related research.

At the 2nd ENMC General Assembly Meeting in April 2025, the ENMC Funding partners, Associated Partners, members of the Research Committee and members of the Company Forum selected two themes:

1. Improving transition from being a child to an adult with neuromuscular disease

2. Assessing meaningful long-term outcomes of gene therapy

The themes are broad; therefore, the ENMC does not expect all sub-categories to be covered in a single workshop application. Organisers who wish to address one of these themes and apply for an ENMC workshop may focus on one or more topics related to the theme. Organisers should clearly define the rationale, background, objectives, and expected deliverables of the workshop, in accordance with the ENMC Workshop Application Guidelines and the additional Guidelines for Themed Workshop Applications.

The submission deadline is: 1 March 2026. 

This is ENMC at a glance:

Most recent news

ENMC Impact Report 2024 is NOW available!

We are proud to present the ENMC Impact Report 2024! Read about…

ENMC APPROVED 4 WORKSHOP APPLICATIONS

ENMC is happy to announce that 4 workshop applications have been…

TREAT-NMD – new ENMC Associated Partner

We are thrilled to announce that TREAT-NMD has joined as an Associated…

ENMC Mission Statement

“The mission of ENMC is to encourage and facilitate communication and collaboration in the field of neuromuscular research with the aim of improving diagnosis and prognosis, finding effective treatments and optimising standards of care to improve the quality of life of people affected by neuromuscular disorders.”