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Introduction

One of the ENMC´s main values is transparency. We facilitate discussions between clinicians and researchers about their most recent results and opinions at our workshop within a confidential setting, and at the same time we would like to inform other people who are interested in the workshop topics. Therefore, after each workshop both a lay report and a scientific full paper will be written by the organizers of the workshop.

The lay report is published on our website within two weeks time after the workshop has taken place to inform the lay community, i.e. the patients and their representatives. 

The scientific paper needs to be submitted within 6 months time after the workshop to the journal of Neuromuscular Disorders. This paper provides an overview of all presentations and discussions that have taken place at the workshop. The scientific paper is one of the key deliverables of each workshop and highly valued by our network.