PARTNER ORGANISATIONS
The following partner organisations support ENMC with their annual contributions. One representative from each organisation is a member of our Executive Committee. This committee oversees the activities of ENMC and makes strategic decisions.
ENMC welcomes new partner patient organisations from European countries. Please contact the ENMC office at enmc@enmc.org if you are interested to discuss a full or associated partnership.
Denmark
Muskelsvindfonden
Mr H.I. Jørgensen, Direktør
Kongsvang Allé 23
8000 Aarhus C
Denmark
France
Association Française contre les Myopathies (AFM)
Dr Alexandre Méjat
1, Rue de l’Internationale
91000 Evry Cedex
France
Germany
Deutsche Gesellschaft für Muskelkranke e.V. (DGM)
Dr Arpad Von Moers
Spandauer Damm 130
D-14050 Berlin
Germany
Italy
Fondazione Telethon ETS
Dr Anna Ambrosini
Via Varese 16/B
00185 Roma RM
Italy
The Netherlands
Prinses Beatrix Spierfonds
Dr Simone van den Berge
Postbus 85810
2508 CM Den Haag
The Netherlands
The Netherlands
Spierziekten Nederland
Dr Ingeborg Meijer
Lt. Gen. van Heutszlaan 6
3743 JN Baarn
The Netherlands
Switzerland
Schweizerische Stiftung für die Erforschung der Muskelkrankheiten (FSRMM)
Dr Raffaella Willmann
Chemin des Jordils 4
2016 Cortaillod
Switzerland
United Kingdom
Muscular Dystrophy UK
Dr Kate Adcock
32 Ufford Street
London, SE1 8QD
United Kingdom
ASSOCIATED PARTNER ORGANISATIONS
The following Associated Partners provide the ENMC with a yearly contribution of 5K each. This contribution enables us to develop new long standing projects and secure the funding of condition-specific workshops and themed workshops. The Associated Partners also help the ENMC to make strategic decisions at the two-yearly General Assembly Meeting.
Finland
Finnish Neuromuscular Disorders Association
Mrs. Sari Kuosmanen
Executive Director, MSc (Econ)
Lihastautiliitto ry
Läntinen Pitkäkatu 35
FI-20100 Turku
Finland
Austria
Österreichische Muskelforschung
Ms. Verena Bittner
+43 650 710 13 73
v.bittner@muskelforschung.at
Facebook: Österreichische Muskelforschung
SMA Europe
Dr Yasemin Erbas
President SMA Europe
secretariat@sma-europe.eu
World Duchenne Organisation
Dr Elizabeth Vroom
Chair of the board of World Duchenne Organization
info@worldduchenne.org
World Muscle Society
Prof. Volker Straub
President World Muscle Society
office@worldmusclesociety.org
