Entries by ENMC

WMS new Associate Partner of ENMC

We are proud to announce that the World Muscle Society became a new Associate Partner of the ENMC. Good to have more collaborations in the NMD field! Partner Organisations – ENMC

Alexandra Breukel leaving ENMC

After 10 years of working with much pleasure and dedication as ENMC Managing Director (MD), it is time for a new adventure! I will be leaving the ENMC as of 1 October 2023 and take time off to find a new chapter in my career. Herewith I would like to thank you all for a […]

18 days to go for submitting your workshop application before September 1st!

As we are coming closer to the deadline, just a gentle reminder to submit your ENMC workshop application to enmc@enmc.org before September 1st! If you need a pre-check by the ENMC office, please do not send your proposal later than 22 August 2023. We are looking forward to your applications! Before submitting, please check out our guidelines […]

ENMC will be present at the 26th Congress of the DGM!

The 26th Congress of the Medical and Scientific Advisory Board of the German Muscular Dystrophy Society will be held in Essen from 23 to 24 March 2023. This innovative, interdisciplinary and visionary congress will atract many participants! Ofcourse ENMC will be present as well. On March 24 we will host a booth at the Congress On […]

New article about 30 years of ENMC in the journal of NMD!

In celebration of ENMC’s 30th anniversary we’d like to share with you this article about our impact so far! Over the last 30 years ENMC has: Organized 270 workshops Established a network of over 4500 participants from more than 65 countries and from 5 continents. Published 270 lay reports on our website and over 220 […]

Submit your workshop application before March 1st!

As we are coming closer to the deadline, just a gentle reminder to submit your ENMC workshop application to enmc@enmc.org before March 1st! If you need a pre-check by the ENMC office, please do not send your proposal later than 20 February 2023. We are looking forward to your applications! Before submitting, please check out our guidelines and […]

Upcoming ENMC workshops 2023

We are proud to announce this year’s first confirmed workshops 10-12 March 2023: 270 – Consensus for SMN2 genetic analysis in SMA patients? Organisers: Dr E. Bertini (Italy), Dr F.D. Tiziano (Italy), Dr E. Tizzano (Spain) 16-18 Juni 2023: 272 –  Inclusion Body Myositis: 10 years of progress—revision of the “ENMC 2013 diagnostic criteria for […]

Newest lay reports

The ENMC attaches great value to informing the community of the progress and results achieved at each ENMC workshop. Therefore, both a lay report and a scientific full paper will be written by the organisers of the workshop, in collaboration with all workshop participants. Patients and patient representatives play an important role in ensuring lay […]