PARTNER ORGANISATIONS
The following Full Partner organisations support the ENMC with their annual contributions. Of each organisation, one representative is a member of our Executive Committee. This committee oversees the activities of the ENMC and makes strategic decisions.
Denmark
Muskelsvindfonden
Mr H.I. Jørgensen, Direktør
Kongsvang Allé 23
8000 Aarhus C
Denmark
France
Association Française contre les Myopathies (AFM)
Dr A. Méjat
1, Rue de l’Internationale
91000 Evry Cedex
France
Germany
Deutsche Gesellschaft für Muskelkranke e.V. (DGM)
Prof. U. Schara-Schmidt
Hufelandstr. 55
45122 Essen
Germany
Italy
Fondazione Telethon ETS
Dr A. Ambrosini
Via Varese 16
B00185 Roma
Italy
The Netherlands
Prinses Beatrix Spierfonds
Dr S. van den Berge
Postbus 85810
2508 CM Den Haag
The Netherlands
The Netherlands
Spierziekten Nederland
Dr I. Meijer
Lt. Gen. van Heutszlaan 6
3743 JN Baarn
The Netherlands
Switzerland
Schweizerische Stiftung für die Erforschung der Muskelkrankheiten (FSRMM)
Dr R. Willmann
Chemin des Jordils 4
2016 Cortaillod
Switzerland
United Kingdom
Muscular Dystrophy UK
Dr K. Adcock
32 Ufford Street
London, SE1 8QD
United Kingdom
ASSOCIATED PARTNER ORGANISATIONS
The following Associated Partners provide the ENMC with a yearly contribution of 5K each. This contribution enables us to develop new long standing projects and secure the funding of condition-specific workshops and themed workshops. The associated partners also help the ENMC to make strategic decisions at the two-yearly General Assembly Meeting.
Austria
Mrs. Verena Bittner
Sozialmedizinisches Zentrum Süd
Kundratstraße 3,
1100 Wien
Austria
Finland
Finnish Neuromuscular Disorders Association
Mrs Sari Kuosmanen
Executive Director
Lihastautiliitto ry
Läntinen Pitkäkatu 35
FI-20100 Turku
Finland
SMA Europe
Dr Yasemin Erbas
President SMA Europe
secretariat@sma-europe.eu
World Duchenne Organisation
Dr Elizabeth Vroom
Chair of the board of World Duchenne Organization
info@worldduchenne.org
World Muscle Society
Prof. Volker Straub
President World Muscle Society
office@worldmusclesociety.org
