PATIENTS’ IMPRESSIONS OF ENMC WORKSHOPS
“It was exciting to be part of the ENMC conference!”
Peter Mikkelsen, a 33-year old patient with Duchenne Muscular Dystrophy visited the 206th European Neuromuscular Centre (ENMC) workshop on:
Care for a novel group of patients: Adults with DMD. Scope of the problem and need for care recommendations
“I am impressed by their enthusiasm and commitment to create a European network for Pompe disease. Cooperation at this level you actually don´t see very much”
Wilma Treur, Pompe patient and secretary of the International Pompe Association (IPA) about the 208th ENMC workshop
“SMA Europe feels the momentum for SMA has come and the whole SMA community works hard to seize it”
A quote by both Anna Wittchen, SMA patient, and Mencía de Lemus Belmonte, mother of 2 SMA children and chair of SMA Europe, who both attended the 209th ENMC workshop on SMA outcome measurements and trial readiness.
“Now I know that all doctors are working very hard to find treatments for the myotonic dystrophy type I my wife is suffering from”
Mr and Mrs Colombo from Italy attended the 207th ENMC workshop about respiratory insufficiency in MD
